You can join in with an organised fundraising events and raise funds for us.
Please ensure you let the team know you are fundraising for the Lupus Trust.
World Lupus Federation Global Survey Finds 91% of People with Lupus Report Using Oral Steroids to Treat Lupus
Prominent Hong Kong actress Kathy Chow has died
Kathy Chow a prominent Hong Kong actress, singer and producer has died suddenly aged 57. Kathy is know to have had Systemic Lupus Erythematosus for several years.
Kathy was a leading Hong Kong acting star of the 1990s. She was best known for her role as Zhou Zhiruo in the 1994 TVB series The Heaven Sword And Dragon Saber. Her last film role was on 2021 action comedy, “Heroes Return,” directed by Yip Wing-kin. Kathy was lead actor and producer.
According to Chinese news site St Headline, Kathy was diagnosed with systemic lupus erythematosus. Her condition was not publicly revealed, so only a few people knew the reason why the actress could not move easily.
Her mother said she wishes her daughter will “stay happy in another world, your family is proud of you.”
Jayden wins Young Hero award after saving mums life
The ‘Who Cares Wins Awards’ takes place each year to celebrate healthcare heroes from the frontline NHS staff to the ordinary people who go above and beyond.
Jayden, aged 12, was revealed as the 2022 winner of the Young Hero award, after saving the life of her mum, Natasha, who suffers from Lupus and heart failure.
Philip Young takes on 52 half marathons for lupus research
Twin Peaks singer Julee Cruise dies battling lupus
American musician, singer, songwriter and actress Julee Cruise has died at the age of 65.
She appeared as a character in Twin Peaks, singing in the town’s bar, and in its movie spin-off Twin Peaks: Fire Walk With Me. She also featured in Twin Peaks: The Return, Lynch’s third season of the show, in 2017. Twin Peaks creator David Lynch has paid tribute to Julee, who recorded the TV show's haunting theme, as "a great musician, a great singer and a great human being".
On 28 March 2018 Julee announced on her Facebook page that she had systemic lupus, which caused her considerable pain and affected her ability to walk and stand.
Her husband, Edward Grinnan, wrote on Facebook: “She left this realm on her own terms. No regrets. She is at peace … I played her [B-52’s song] Roam during her transition. Now she will roam forever. Rest in peace, my love.”
Scientists find a genetic cause of lupus
Coronavirus (COVID-19)
Emma-Jayne crowned Miss Voluptuous UK Ambassador
Lupus research hero Dr. Marc Chevrier passes away
Global Survey Finds Lupus Greatly Impacts Physical Function and Quality of Life
In a new global survey of more than 3,500 people with lupus released by the World Lupus Federation (WLF) for World Lupus Day,, nearly 7 in 10 participants responded that lupus hampers their mobility. The majority of survey respondents also reported they are limited from doing daily activities because of lupus, including limitations going up and down stairs (67%) and doing chores (69%) such as vacuuming or yard work.
FDA grant fast-track designation to potential new treatment for lupus
Gangsta Manga creator Kohske diagnosed with lupus
Gangsta. manga creator Kohske revealed on their Twitter account that they have been diagnosed with systemic lupus erythematosus.
Lina Ben Mhenni, Tunisian Free Expression Activist and Revolutionary loses her battle with lupus
Tributes are pouring in after prominent Tunisian human rights activist and blogger Lina Ben Mhenni, one of the heroes of the 2011 revolution, died in the early hours of Monday from lupus.
Florida dispatcher gifts kidney to coworker for Christmas
LGBT activists in China seek to change marriage civil code
It was only after her partner´s death that He Meili realized the full meaning of marriage.
As a lesbian couple in China, He and Li Qin kept their ties largely unspoken, sometimes introducing themselves as cousins. This rarely bothered He until Li succumbed to complications from lupus in 2016, and Li´s parents demanded that He hand over the deed for their apartment and other property documents under Li´s name.
Woman battling Lupus will get a kidney from her daughter's teacher
Tracy Shearin-Drayton, a preschool teacher and mom from Greensboro, North Carolina, thought she'd have to wait five to eight years to get a kidney transplant. Shearin-Drayton was diagnosed with Lupus in 2009, and in August, she made public plea for a kidney donation, sharing her story with local news station WFMY.
Lupus Trust to receive £85,000 funding from the Oddfellows
China launches new programme to help lupus patients
The launch of China’s first patient-assistance program boosting drug availability for needy patients with systematic lupus erythematosus was announced in Shanghai.
Treatment costs for the disease are high. Annual medical bills for SLE patients in Shanghai last year ranged from 34,000 yuan (£3,843) to 107,000 yuan (£12,100)..
"Many patients are in financial crisis due to the disease and some have to quit taking medication due to the expense,” said Hu Ningning from China Primary Healthcare Foundation.
Kim Kardashian believes she has lupus
Season 17 of Keeping Up With The Kardashians airs on Sunday on E! A new promo for season 17 was released on Thursday, which shows Kim Kardashian getting emotional as she has a major health scare. Kim is shown at the doctor's office getting X-rays and testing for lupus.
"I feel this in my bones. I probably have lupus," the 38-year-old reality star tells her mom, Kris Jenner, as she wipes away tears and shots of Kim at the doctor's office flash on the screen.
