I often ask people what is the worst thing about having lupus and get varied responses, one response that other people might not expect is ‘I feel guilty’. Even thought we didn’t cause it and can’t control it, we can still sometimes feel guilty about having a chronic illness.
Virtual reality relieves pain of patients
When it comes to virtual reality (VR), most people may think of computer games, but the application of VR is far more than that.
VR is widely applied today in medical services, particularly in pain management. Wearing a headgear equipped with VR technology, patients enter a virtual realm and are immersed in what they see. The experience effectively disperses their brain’s perception of pain, thereby easing the pain.
4 year old Lupus patient Scarlett named Children’s Champion
In 2018 Scarlett Schneider was diagnosed with a rare case of pediatric lupus, which nearly took her life. She recovered after a lengthy stay at Sanford Children’s Hospital in Fargo, the region’s only Children’s Miracle Network Hospital.She amazed doctors with her resilience and sunny disposition in the face of a life-threatening illness. Now she is bringing hope and encouragement to children and families across the country.
FDA Approves Use of Benlysta for Children and Teens with Lupus
Standing Eight. Not all fights take place in the ring
You can’t pour from an empty glass. The art of self care.
Managing Systemic Lupus Erythematosus: Updated 2019 EULAR Recommendations Released
Based on emerging new evidence and expert consensus, a task force put together by the European League Against Rheumatism (EULAR) released updated recommendations for the management of systemic lupus erythematosus (SLE). This report was published in Annals of the Rheumatic Diseases.
The investigators performed a systematic review of studies focused on treatment strategies for the management of SLE published between January 2007 and December 2017. Recommendations for 4 broad categories were developed following the modified Delphi method, in which the task force devised related questions, elicited expert opinions, and reached consensus.
New York attorney general sues stem cell clinic for false, misleading claims
Working with lupus
When you get lupus the reality is that you will almost certainly have to make lifestyle changes and one of those may be to your work life. Whether you live to work or work to live a job is an integral part of most people’s life. When lupus strikes it can often prevent people from continuing to work at all.
An Afternoon Nap May Lower Your Blood Pressure
Janice Freeman, a contestant on The Voice (USA) dies
Flare day comfort kit
When you’re having a flare you really don’t want to move much so this might help. You can prepare a flare or bad day box/bag in advance to have ready for when you need things close at hand. The idea is to put everything you might need into the box, include all your favourite things and a few treats.
NBS Star DeMar DeRozan doing his part to raise Lupus awareness
NBA star DeMar DeRozan brings fans to their feet when he sails through the air and slams the ball through the hoop. The roar of the crowd is deafening, but no one is cheering more loudly than his mother. Diane DeRozan has been her son’s biggest fan since he first stepped onto a basketball court as a grade-schooler.
Miss Jamaica Universe 2014 finalist, Zandrea Bailey dies from lupus.
The importance of smear tests
If you're feeling blue, Raynaud's may be the cause!
Christmas gift ideas
Coping with Christmas
Some things that might trigger a flare: divorce, bereavement, virus and Christmas!! Yes Christmas, a wonderful but potentially very stressful time of year.
Lupus is unpredictable and can interfere with our lives, stopping us doing everything that we want to and that includes participating in Christmas celebrations.
So let’s look at a few Christmas hacks so you can participate in Christmas!
TV anchor Durga Menon passes away age 35.
Popular Malayalam TV host Durga Menon passed away on Friday in a private hospital in Kochi. She was just 35 years old.
According to reports, she was undergoing treatment for Lupus. She was kept on ventilator support for the last 21 days and unfortunately succumbed to a heart attack on Friday evening.
She is survived by husband Vinod, a businessman, and son Gowrinath.