When you have a chronic illness and particularity when you’re in the midst of a very bad episode or flare, it’s hard to feel grateful for anything. We get overwhelmed by everything we have to cope with and forget to express gratitude, yet if you think about it we all have something to be grateful for.
Kim Kardashian believes she has lupus
Season 17 of Keeping Up With The Kardashians airs on Sunday on E! A new promo for season 17 was released on Thursday, which shows Kim Kardashian getting emotional as she has a major health scare. Kim is shown at the doctor's office getting X-rays and testing for lupus.
"I feel this in my bones. I probably have lupus," the 38-year-old reality star tells her mom, Kris Jenner, as she wipes away tears and shots of Kim at the doctor's office flash on the screen.
Husband gave his wife a kidney but still needs a donor to save her
Snob World's Cole & Kelsea Moscatel donate to Lupus LA
Cole Moscatel and his wife Kelsea, creators of new luxury, lifestyle platform Snob World, recently donated a generous sum to Lupus LA, a non-profit health organization in Los Angeles. Lupus hits close to home for the couple as Cole was diagnosed with the inflammatory disease six years ago at 15. Since then, he and his wife Kelsea have experienced first-hand the everyday struggles lupus brings.
The Art of Napping
Naps are not only beneficial because they make us feel less sleepy and more alert, but because they improve our cognitive functioning, reaction times, short-term memory and even our mood. Research also found that found that motor learning, which is where brain pathways change in response to learning a new skill, was significantly greater following a brief afternoon nap for regular nappers when compared to non-nappers.
If you have lupus you know all about napping, infact we’re professionals. So could we improve the quality of our napping? Here’s a few tips to get the best from your nap.
Chinese husband ready to sacrifice cancer treatment so wife and daughter can receive care
A Chinese husband was forced to pass up treatment for cancer so that his wife and daughter could both receive the medical care they needed.
Ke Meinan, 42, was diagnosed with stomach cancer in 2015 and his 46-year-old wife Wang Huaying diagnosed with breast cancer a month later.
But when their 16-year-old daughter was diagnosed with the autoimmune disease lupus, the family, from the eastern province of Jiangxi, realised that they could not afford to pay for all three of them to be treated.
Amy Carter took 30 pills daily to manage her chronic pain then died of an accidental overdose at 23
Sleeping in the heat
We’re just not used to hot weather in the UK so when we get a sudden heatwave our body struggles to cope with it, especially sleeping. In countries that have more heat than we do they have air conditioning but it would be used so rarely here that the vast majority of us don’t have it. So what can we do to help us sleep in the hot weather?
The burden of guilt
Virtual reality relieves pain of patients
When it comes to virtual reality (VR), most people may think of computer games, but the application of VR is far more than that.
VR is widely applied today in medical services, particularly in pain management. Wearing a headgear equipped with VR technology, patients enter a virtual realm and are immersed in what they see. The experience effectively disperses their brain’s perception of pain, thereby easing the pain.
4 year old Lupus patient Scarlett named Children’s Champion
In 2018 Scarlett Schneider was diagnosed with a rare case of pediatric lupus, which nearly took her life. She recovered after a lengthy stay at Sanford Children’s Hospital in Fargo, the region’s only Children’s Miracle Network Hospital.She amazed doctors with her resilience and sunny disposition in the face of a life-threatening illness. Now she is bringing hope and encouragement to children and families across the country.
FDA Approves Use of Benlysta for Children and Teens with Lupus
Standing Eight. Not all fights take place in the ring
You can’t pour from an empty glass. The art of self care.
Managing Systemic Lupus Erythematosus: Updated 2019 EULAR Recommendations Released
Based on emerging new evidence and expert consensus, a task force put together by the European League Against Rheumatism (EULAR) released updated recommendations for the management of systemic lupus erythematosus (SLE). This report was published in Annals of the Rheumatic Diseases.
The investigators performed a systematic review of studies focused on treatment strategies for the management of SLE published between January 2007 and December 2017. Recommendations for 4 broad categories were developed following the modified Delphi method, in which the task force devised related questions, elicited expert opinions, and reached consensus.
New York attorney general sues stem cell clinic for false, misleading claims
Working with lupus
When you get lupus the reality is that you will almost certainly have to make lifestyle changes and one of those may be to your work life. Whether you live to work or work to live a job is an integral part of most people’s life. When lupus strikes it can often prevent people from continuing to work at all.
An Afternoon Nap May Lower Your Blood Pressure
Janice Freeman, a contestant on The Voice (USA) dies
Flare day comfort kit
When you’re having a flare you really don’t want to move much so this might help. You can prepare a flare or bad day box/bag in advance to have ready for when you need things close at hand. The idea is to put everything you might need into the box, include all your favourite things and a few treats.
