To someone with a chronic illness what I’m going to write about may seem obvious, however people without lupus may not fully understand what it’s like and might sometimes speak without thinking.
Gangsta Manga creator Kohske diagnosed with lupus
Gangsta. manga creator Kohske revealed on their Twitter account that they have been diagnosed with systemic lupus erythematosus.
In sickness and in health. Relationships and lupus
Lina Ben Mhenni, Tunisian Free Expression Activist and Revolutionary loses her battle with lupus
Tributes are pouring in after prominent Tunisian human rights activist and blogger Lina Ben Mhenni, one of the heroes of the 2011 revolution, died in the early hours of Monday from lupus.
Hindsight is a wonderful thing. What I wish I knew before I got lupus
Lupus is part of you not all of you. Loss of identity to chronic illness
When asked to describe themselves people often say they are someone’s mother/father/sister/brother/wife/husband, maybe what they do for a living, where they live and so on, but how would you describe yourself? In amongst the words would lupus or pain or exhausted etc be part of the description? Think about the quiz shows where the teams introduce themselves, “My name is John, I’m 51 and a Managing Director from Essex”, not once do they say “and I have lupus (or any other chronic illness)”.
Things to give up for the New Year
Florida dispatcher gifts kidney to coworker for Christmas
New Year Resolutions, friend or foe?
As New Year approaches people are thinking of making resolutions. Personally I never bother, if I want to change something I do it no matter what time of year it is, especially if I think it will benefit my health. Also you make a resolution and don’t follow it through you might feel you’ve ‘failed’ which isn’t a good thing. Studies have shown that less than 25% of people actually stay committed to their resolutions after just 30 days, and only 8% accomplish them.
However, if you’re absolutely committed to New Year resolutions you should consider in advance which you might be able to achieve and avoid those which you know will be doomed to failure from the start.
LGBT activists in China seek to change marriage civil code
It was only after her partner´s death that He Meili realized the full meaning of marriage.
As a lesbian couple in China, He and Li Qin kept their ties largely unspoken, sometimes introducing themselves as cousins. This rarely bothered He until Li succumbed to complications from lupus in 2016, and Li´s parents demanded that He hand over the deed for their apartment and other property documents under Li´s name.
Woman battling Lupus will get a kidney from her daughter's teacher
Tracy Shearin-Drayton, a preschool teacher and mom from Greensboro, North Carolina, thought she'd have to wait five to eight years to get a kidney transplant. Shearin-Drayton was diagnosed with Lupus in 2009, and in August, she made public plea for a kidney donation, sharing her story with local news station WFMY.
How to 'Hygge'
Lupus Trust to receive £85,000 funding from the Oddfellows
Fatigue v Tiredness
People often say they’re exhausted when in reality they’re just tired, caused most likely by something such as working or playing too hard, or being stressed. People lead very busy lives these days, so tiredness is not unusual. What people don’t understand is that tiredness isn’t the same for everyone, it’s very different to the fatigue caused by chronic conditions such as lupus.
China launches new programme to help lupus patients
The launch of China’s first patient-assistance program boosting drug availability for needy patients with systematic lupus erythematosus was announced in Shanghai.
Treatment costs for the disease are high. Annual medical bills for SLE patients in Shanghai last year ranged from 34,000 yuan (£3,843) to 107,000 yuan (£12,100)..
"Many patients are in financial crisis due to the disease and some have to quit taking medication due to the expense,” said Hu Ningning from China Primary Healthcare Foundation.
How to practice gratitude
When you have a chronic illness and particularity when you’re in the midst of a very bad episode or flare, it’s hard to feel grateful for anything. We get overwhelmed by everything we have to cope with and forget to express gratitude, yet if you think about it we all have something to be grateful for.
Kim Kardashian believes she has lupus
Season 17 of Keeping Up With The Kardashians airs on Sunday on E! A new promo for season 17 was released on Thursday, which shows Kim Kardashian getting emotional as she has a major health scare. Kim is shown at the doctor's office getting X-rays and testing for lupus.
"I feel this in my bones. I probably have lupus," the 38-year-old reality star tells her mom, Kris Jenner, as she wipes away tears and shots of Kim at the doctor's office flash on the screen.
Husband gave his wife a kidney but still needs a donor to save her
Snob World's Cole & Kelsea Moscatel donate to Lupus LA
Cole Moscatel and his wife Kelsea, creators of new luxury, lifestyle platform Snob World, recently donated a generous sum to Lupus LA, a non-profit health organization in Los Angeles. Lupus hits close to home for the couple as Cole was diagnosed with the inflammatory disease six years ago at 15. Since then, he and his wife Kelsea have experienced first-hand the everyday struggles lupus brings.
The Art of Napping
Naps are not only beneficial because they make us feel less sleepy and more alert, but because they improve our cognitive functioning, reaction times, short-term memory and even our mood. Research also found that found that motor learning, which is where brain pathways change in response to learning a new skill, was significantly greater following a brief afternoon nap for regular nappers when compared to non-nappers.
If you have lupus you know all about napping, infact we’re professionals. So could we improve the quality of our napping? Here’s a few tips to get the best from your nap.
